Ehlers-Danlos Syndrome Online Support Group
Individuals with Ehlers-Danlos syndromes (EDS) have a genetic defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in patients with EDS are the result of faulty or reduced amounts of collagen. Collagen is a protein, which acts as a "glue" in the body, adding strength and elasticity to connective tissue.
Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
Who Is Bens Friends
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Bens Friends Communities
New Member Introductions
New members, start your experience here. Introduce yourself and share your story. Let us welcome you
General discussion about a wide range of topics related to EDS
Wheres the old discussions?
Type 3 complications. Who can relate?
Famous people with EDS
Welcome to Complementary Therapies! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. This is the place to discuss healing modalities that can complement medical treatment.
Newbies Guide to EDS
Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information
Types of EDS
Preparing for an appointment with a new Doc
News From Bens Friends
Events of interest to Bens Friends Moderators and our Communities. Just email to have the staff add your event.
Discussion about this site, its organization, how it works, and how we can improve it.
Prayer and Healing Energy Requests
A place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends, for any issue(s) we deal with.