What is Ehlers-Danlos Syndrome?

Ehlers-Danlos Syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provides strength and elasticity to the underlying structures in your body.

Ehlers-Danlos Syndrome is caused by a defect in the synthesis of collagen, specifically mutations in the COL5A and COL3A genes. The collagen in connective tissue helps tissues resist deformation. Collagen is an important contributor to the physical strength of skin, joints, muscles, ligaments, blood vessels and visceral organs; abnormal collagen renders these structures more elastic. 


Ok. This is embarrassing. I am forgetting things at work. Things that I've been doing for over 16 years. Also, asking stupid questions. For instance, today I was proofreading pages for a book I designed, and asked the editor where certain pages were. (I had looked 3 times for them). She responded that they were there, and when I looked again, there they were, and I then remembered seeing them, just minutes before! This kind of thing is happening too often to me. Could it be part of the…

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Tell me something good!

Hi everyone! Hope it's a good day for you! This is such a great place to come to ask questions, vent, moan and groan when we need to, but lets change the mood today! Tell me something good that has happened in your life, or something you are looking forward to!

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9 Replies · Reply by SK 10 hours ago

Weddings with Chronic Illness

Does anyone have advice for planning a wedding with chronic illness? I'd like to avoid any common mistakes, if possible! I'm busy at work planning two wedding receptions (we are an international couple) so if anyoone here has gotten married or jsut has advice in general, it would be very helpful. I just want to know abut anything that I might want to keep in mind. We're pretty poor so this is as much of a budget thing as we can manage. One reception will be indoors at restaurant and the other…

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2 Replies · Reply by Kate on Wednesday

Permanent Bursitis Solution?

It's back again and it's really bad. I've been in denial for three days but I woke up today already crying in my sleep and I just can't ignore it anymore. This was triggered by the Barometric pressure getting two heavy. Which has been the trigger the past 3 times. I have no control over that.  I tried looking it up and haven't found anything useful. Does anyone have any advice for a permanent solution? I can't keep doing this. I really ca't. I can handle near anything else. If anyone has a…

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11 Replies · Reply by SK Oct 16

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Samantha B updated their profile
2 hours ago
SK replied to SK's discussion Tell me something good!
"These are great! I surely needed to hear something good, and you all have surely delivered! I'm hap…"
10 hours ago
Samantha B replied to SK's discussion Tell me something good!
"I am starting a gentle workout program specifically meant to help strengthen the muscles to help su…"
13 hours ago
dancermom liked Marcy Roberts's discussion Forgetfulness
Marcy Roberts posted a discussion
Ok. This is embarrassing. I am forgetting things at work. Things that I've been doing for over 16 y…
scott o left a comment for Mariah Schroeder
"Huge welcome Mariah!
One tip, if you have specific questions it's best to start a New Discussion an…"
David Kelly and Samantha B are now friends
Kate replied to Michaela's discussion Weddings with Chronic Illness
"Congratulations! Somes things that come to my mind are the following
- have a personal attendant, m…"



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