What is Ehlers-Danlos Syndrome?

Ehlers-Danlos Syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provides strength and elasticity to the underlying structures in your body.

Ehlers-Danlos Syndrome is caused by a defect in the synthesis of collagen, specifically mutations in the COL5A and COL3A genes. The collagen in connective tissue helps tissues resist deformation. Collagen is an important contributor to the physical strength of skin, joints, muscles, ligaments, blood vessels and visceral organs; abnormal collagen renders these structures more elastic. 

Happy Holidays!

I hope everyone is enjoying this time of year. Spending time with friends and family and eating tons of food. I've been dealing with too much pain for the last month and couldn't walk very much. I'm happy to report that I received a motorized scooter for Christmas. It's such a blessing to be able to get out again. I was stuck at home most of the time or hobbling around with a cane and transport wheelchair. I'm looking forward to shopping and getting together with friends. I hope all of you are…

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4 Replies · Reply by Spammy Dec 20, 2015

Updating and expanding community platform to support connection among people with rare illnesses.

Ben's Friends, the network that runs this community, is a 501(c)3 nonprofit that builds support communities for patients with rare diseases. Every month we serve 100,000+ patients looking to connect with others like them. We have a wait list of 100+ communities we can't launch because of outdated technology. That is easily a million more patients we could be helping, if we only had a new home. Your generous donations can help someone suffering TODAY! You can support us creating new communities…

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3 Replies · Reply by Michaela Dec 17, 2015

Let's chat!

Members here haven't had a chat room for ... well, a long time. Today, the technical fairy waved her magic wand and **abracadabra!** we can chat. Who knew that it was possible! So make yourself at home and visit with your EDS friends.

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5 Replies · Reply by Michaela Dec 17, 2015

Activity

puffingirl15 is now a member of Ehlers-Danlos Syndrome Online Support Group
Sunday
GApeach updated their profile
Friday
Cristin is now a member of Ehlers-Danlos Syndrome Online Support Group
Jan 29
ModSupport left a comment for Q
"Welcome to this quiet but friendly support community. Start a conversation! Ask away! We're glad to…"
Jan 24
Q is now a member of Ehlers-Danlos Syndrome Online Support Group
Jan 23
amurph replied to amurph's discussion Anyone out there??
"Hey Seenie! Sorry it took me so long to get back to you! I'd love to be introduced to other people,…"
Jan 7
Mommy2three is now a member of Ehlers-Danlos Syndrome Online Support Group
Dec 30, 2015
Michaela posted a discussion
This is an interesting article about some famous people with EDS! Take a look and feel free to disc…
Dec 30, 2015
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