What is Ehlers-Danlos Syndrome?

Ehlers-Danlos Syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provides strength and elasticity to the underlying structures in your body.

Ehlers-Danlos Syndrome is caused by a defect in the synthesis of collagen, specifically mutations in the COL5A and COL3A genes. The collagen in connective tissue helps tissues resist deformation. Collagen is an important contributor to the physical strength of skin, joints, muscles, ligaments, blood vessels and visceral organs; abnormal collagen renders these structures more elastic. 


Eye trouble

So something weird has been happening with my eyes. My sight has been declining since November for some reason. At this point, I can't read anything at a distance, even with my glasses.  I saw an eye specialist today and rand a ton of tests and.... they came back normal ugh. My eyesight is bad and glasses change wont fix that apparently. They don't know why it changed rapidly or why I have double vision/halos since my retina is fine. He wants me back in two weeks for additional tests and then…

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2 Replies · Reply by Michaela Jul 25

New feature on this Ning network

Hello, members, we can now leave status updates on this network to let others know how we are doing. There is a white box on the Activity Feed as well as on your own page that says "What are you up to?" You can type a comment in there and share it to the group. Try it, and let us know what you are up to today. :) 

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1 Reply · Reply by Michaela Jul 12

my mother never had the chance to tell me there'd be days like these. ..

Hey there everyone, I don't mean to be a downer and I apologize if I come across as anything but positive because generally until recently I've been a perpetually optimistic spiritualist able to take any challenge and accept it as being a valuable lesson and opportunity for growth. However lately I've been struggling more than ever with my depression and anxiety as my condition seems to be worsening quickly even as I wait for my testing and diagnosis. My doctor has sent me to be tested asap out…

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4 Replies · Reply by Angienoelle Jul 7

I'm back from my Swedish wedding!

Hello all! I'm back in Florida. The wedding went great but it's not over yet. Sorry but I still wont be able to keep up with admin duties for a bit longer. The US wedding is coming up shortly and then I'm going to need a bit of a cool down to recover from these past couple of very intense months.  In the meantime I can share some things with you! First off here is a link to the livestream of the entire wedding. It's not super exciting but you can see myself and my love in person so that's fun,…

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5 Replies · Reply by Michaela Jul 11


I just went to the doctor for an infection on my knee in a place I have no feeling. It seems to wei…
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