Ehlers-Danlos Syndrome Online Support Group

Category Topics

New User Help

Are you a new user?
Don’t worry we will guide you through the following videos.


What is Ehlers-Danlos Syndrome?
Individuals with Ehlers-Danlos Syndrome (EDS) have a genetic defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in patients with EDS are the result of faulty or reduced amounts of collagen. Collagen is a protein, which acts as a “glue” in the body, adding strength and elasticity to connective tissue.

Newbies Guide to EDS

Included in this category are resources about Ehlers-Danlos Syndrome Online Support (EDS) written by members by members and notes from the moderators. We strongly encourage all members to explore these pages.

General Discussion

Join the Ehlers-Danlos Syndrome (EDS) discussion forum for patients, friends and families affected with EDS.
We love to hear you stories and information about treatments, symptoms and side effects.

New Member Introductions

New members, start your experience here. Introduce yourself and share your story about Ehlers-Danlos Syndrome. Let us welcome you.

Complimentary Therapies

Welcome to Complementary Therapies! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. This is the place to discuss healing modalities that can complement medical treatment.

Emotional Support

Having a rough time? We're here to listen and support.

Bens Friends

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.


News From Bens Friends


Events of interest to Bens Friends Moderators and our Communities. Just email to have the staff add your event.

Site Feedback

Discussion about this site, its organization, how it works, and how we can improve it.

Prayer and Healing Energy Requests

A place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends, for any issue(s) we deal with.


FAQ about the EDS community

Bens Friends Apps for mobile Devices

Bens Friends Apps for mobile Devices