Hello, brand new user to this group. Thanks for letting me join!
My daughter just turned 15yrs old, diagnosed with POTs & a few other minor things. Diagnosis of pots was about 4 years ago. Passed out about 5 or 6 times, almost seizure like, but tested by neurologist, and saw cardiologisst, definitely not seizure, it is pots.
Happened again this weekend, passed out, and a lady was a witness & mentioned EDS to me. When my daughter came to, she noticed some ‘markers’, asked her questions if she could do certain things & answers were yes to most.
So now looking for a geneticist in central NJ area.
We live in Flemington, Hunterdon County. Could travel up to an hour, but would prefer local if possible.
Insurance is United Healthcare & would need them to take insurance, and preferable not a long wait for new patients!
One person recommended Dr Day-Salvatore in New Brunswick, NJ, who look good maybe?
Dr Day-Salvatore link